I woke up at 6am to bathe, and then got everything prepared, eyedrops ready and then I heard the little one woke up. Oh noes!
:: at Starbucks Midvalley on Mon 845am for his first eye check appointment ::Hubby, too woke up because of the commotion both Jaden and I were making. Him crying while I trying to drop some eyedrops into his eyes as instructed by Dr Choong. We need to drip 2 drops of the eyedrops in his eyes 2 hours before we can wheel him in for the eye refraction test.
:: enjoying his people and car watching, good early morning breeze minus a cuppa ::So it was quite a fight la between the three of us. Hubby nagging and scolding a bit that I should have drip those eyedrops into Jaden's eyes before he woke up, Jaden screaming at both of us for holding him down and attempting to drip something into his small little eyes and me, pressing both Jaden's arms and legs down, pinning him so he can't find an angle to escape while Hubby quickly deal with the eyedrop saga!
*phew* Luckily Hubby helped. If not, I don't know how I would have dealed with the situation. We all soon left for ISEC (International Eye Specialist Centre) at Midvalley, reached in time for our 830am appointment. The nurses attempted to take his temperature and listen to his heartbeat. I use the word attempt, because they did try but failed as the boy just did not want any more foreign stuff near his body. Took his weight and it seems that he lost weight. :(
:: My little Jedi ::We changed him into the robe, they dressed me up in robe and bundle up my hair into the hairnet too as I was going to be the accompanying parent for the anesthesia session. The little one gladly followed into the surgery room as he thinks we are going to another new part of the building only to realize that something is wrong when I held him sitting down on my lap tight, and five others came to help keep his hands and legs and head in place so they could place the gas mask over his nose. After a few struggles and a comment coming from the anesthetist that Jaden is a very very strong boy for his age, the boy fell asleep due to the anesthesia.
I was not allowed to stay inside so I waited by his bed. Hubby was clearly worried and upset that the little one had to go through all these at such an age. The procedure was rather fast. In about 15 minutes, Dr Choong came out and told me the results.
:: The sudden squint in my baby boy ::Good news. It is not brain lesion. Bad news. Jaden has hypermetropia (long-sighted) and both his eyes' power are at 1.5 each. Its still pretty low a power and the best thing to help him correct his vision is to let him wear specs and hopefully we can see some positive changes in his squint in 1-3 months of constant specs wear. Now, that is going to be a challenge but I will choose this road rather to put him down for surgery to correct his eye muscles. Will be meeting back Dr Choong for further checkup in about two months.
:: Waiting for Jaden to wake up on his own after the refraction test ::Jaden took about 45-50 minutes to wake up after he was wheeled out into the daycare room. He just sprung sitting up, holding me close to him but did not show signs of nausea and being uncomfortable. As the gas could be quite dry on the throat, we gave him a lot of water to drink and came home straight and fed him his first meal of the day.
Yea, the little one had to fast 6 hours the night before, hence the early morning procedure so he could just go straight to the centre on an empty stomach right after he wakes up.
We came home to rest for a while, and then off we went again to The Gardens to meet up with his DAN doctor. This is our very first consultation with her and were lucky enough to secure an appointment with her here in KL instead of us having to fly all the way to her country instead.
Had the normal Q & A sessions about Jaden's medical history and then, she explained his previous lab test results to us and told us that she would require Jaden to do further tests to determine if we should head down the chelation way soon or treat other problems first.
The first test we did was the Urine Porphyrin test. Trying to get his pee in a dark environment, really dark was crazy for both him and I. I tried to get his pee from Thursday to Saturday and failed as the dark toilet amused him and Jaden, in an excited state just would not pee. Luckily, I caught sight of his ready-to-pee behavior yesterday evening and thank my lucky stars, it was good pee, enough to fill the test tube right up to the brim!
Cleaned my hands, wiped the tube clean,wrapped it around with a few papers to avoid light and then into the ziplock bag and into the fridge to have it chilled for a while before I take it back to the doctor. She was scheduled to go back today and I got the pee on the last night she was here in KL. You cannot imagine how happy I was when I got the pee !! =)
That Urine Porphyrin test? It set us back RM1290. Yes, for that 8ml of pee! Now, all we have to wait is for the results to come back and *sigh* things are still not settled yet.
I have another challenge to go through and this will be totally on my own as it requires blood drawing -might be up to about 3-4 tubes of blood from the little one and that, Hubby totally stated that he will not have a hand in all that nor presence when the test is being taken. Good luck to me! Gonna be heartbreaking but its got to be done. Just got to search for some mummy to accompany me along, those with experience with dealing with their own child who needs blood drawing too...
oh boy... and then we will be meeting both these doctors back in two months' time!
Wish us some good luck!
No comments:
Post a Comment